Monday, June 4, 2012

Calling Out Cho


Almost 2 years ago, I wrote about comments that Jennifer Aniston made on the Regis and Kelly show. The comments included the R-word. Well it has happened again. Comedian Margaret Cho made similar comments on a Bravo show.

One of my favorite bloggers, Phoebe from the Herding Cats blog, did an excellent job of calling Ms. Cho out for her comments. You can read her blog entry here.

There is one difference though between Ms. Aniston's comments and Ms. Cho's comments. Margaret Cho issued what seems to be a heartfelt apology. You can view that apology at the end of the Herding Cats blog post.

Thank you, Phoebe, for your immediate response to Margaret Cho, and thank you, Ms. Cho, for your sincere apology. This is exactly the way to get a discussion started, and to educate people as to how offensive and hurtful their words can be.

Friday, June 1, 2012

She Glows

I've complained a lot in the past about the way people stare at my children. I'm not going to promise I will never complain again, but I will promise that before I start, I will remember the lovely young mother in this video. She's half my age and wiser by a mile. Check out the way she glows whenever she looks at her son...

A Young Mother's Story

Thursday, May 31, 2012

Shame on Dr. Phil


Most of my readers already know how I feel about pity. Not much angers me more than people who feel sorry for my children, or anyone for that matter, with disabilities. However, there is one aspect of pity that does anger me more - when people pity me or other parents BECAUSE we have children with disabilities. And Dr. Phil McGraw of the Dr. Phil show is someone who does that frequently.

Several years back, Dr. Phil did a show about a family with three children who are deafblind. The entire focus of the show was about how difficult the girls' lives were and what saints the parents were. Now Dr. Phil has gone and done it again.

On April 13th of this year, his show titled "Deadly Consequences' aired. That particular show presented the idea that parents should be able to euthanize their children who have intellectual disabilities. Here's a short synopsis of the show:

The show centered on Annette Corriveau, who has two adult children who have a progressive genetic condition called Sanfilippo syndrome. The show opened with a brief introduction of Corriveau, followed by an interview of her conducted by one of the producers. Over the course of the opening which took more than half of the segment, viewers were shown and/or told the following:

•Video of Corriveau's two children from typical childhood to recent pictures as adults with disabilities;
•Depiction of intellectual and physical disabilities developed as a result of the condition;
•Discussion of the changes in their appearance as they got older, implying that their “not normal” appearance is tragic;
•The fact that Corriveau institutionalized both children when they were young.
•Video of one of Corriveau’s visits: she reported visiting them every two months, but doesn't touch them, because they don't react to her.

The second guest in the segment was attorney Geoffrey Fieger, who defended Jack Kevorkian, the assisted suicide and euthanasia advocate who claimed to have assisted the deaths of about 130 people. According to the New England Journal of Medicine, over two-thirds of Kevorkian’s victims were people with disabilities who were not terminally ill. During this recent segment, Fieger argued that a health care guardian’s right to consent to or refuse medical treatment should be extended to include active euthanasia such as a lethal injection. He asserted that what Corriveau wants is perfectly reasonable and merciful and that existing law against this is stupid.

On May29th, thirty disability rights organizations, led by Not Dead Yet, issued a letter to Dr. Phil criticizing the April 13th segment. A portion of that letter is shown below:

"This program was a horrific assault on people with intellectual and developmental disabilities. By conveying social acceptance and approval of active euthanasia of individuals with disabilities by their family members, the segment threatens their very lives. People with disabilities are reportedly twice as likely to be abused as their nondisabled peers. It is grossly irresponsible that the Dr. Phil Show aired a segment that further promotes any form of violence against a group already subject to discrimination, ridicule and gross devaluation. The idea that people with disabilities are “better off dead” is deeply offensive and cannot be tolerated."


The organizations supporting the letter have called for a public apology for the “Deadly Consequences” segment and for equal time to to be given to individuals with intellectual disabilities and organizations advocating their equal rights.

What are your thoughts? Is that enough? Do you think Dr. Phil will respond? I'm thinking not...

Wednesday, May 30, 2012

Special Exposure Wednesday

I'm still having a very hard time convincing Ronnie he is capable of more - capable of independence - capable of achieving a life of normalcy despite being in a wheelchair. Talking to him about it doesn't seem to work, so I decided to have him do some things he probably had never thought of doing. Maybe if I can string enough of those things together, he will finally understand that he won't need someone to take care of him for the rest of his life.

This past weekend, he worked on sweeping off our basketball court and watering our plants. Sometimes he has to figure out new ways of doing things, but so far he always has.

He's got a ways to go to find that belief in himself, but I know he will get there!




Tuesday, May 29, 2012

A Really Hot Weekend

The heat this past weekend was brutal, and our dog, Cooper, is a good indication of that. Being only 6 months old, he is usually a bundle of energy, but this weekend found him lying down a lot and sipping water from the squishy ball he has in his mouth. Sort of like me, just without the ball!


Friday, May 25, 2012

Memorial Day

It's easy to think of Memorial Day as simply an extra day off work, a three-day weekend. But the day is meant to honor the men and women of the Armed Forces who gave their lives in the service of their country. Just saying "Thank you" seems so inadequate, but I will say it anyway.

Thursday, May 24, 2012

It Happened Again


Back in 2009, I wrote a post about a phone call I received from a Navy recruiter. This recruiter wanted to talk to my daughter, Jessica about her plans for when she exited school. It was obvious while I was talking to him that his purpose was to recruit her for the Navy.

Well, it's happened again. This time it was an Army recruiter calling for my son, Ronnie.

My son, Chip had answered the phone and again, the recruiter starts his speech and makes it difficult to get a word in edgewise. But finally, the recruiter took a breath, and Chip started talking. He described Ronnie's deafness and spina bifida, but said he was a great kid and would be a real asset to the Army. The recruiter got very quiet, and then apologized for calling.

Perhaps the recruiters just get lists of students from the high schools. Perhaps the recruiter knew that I had another son who had joined the Army after high school. But however the information was received, can't the recruiters be a little more sensitive before making these phone calls? Couldn't they ask the schools to mark any students that should not be considered candidates for the service? I am the last person to want to apply labels to people, but in this case I think the label would be better than forcing a family to accept yet again failed dreams they may have had for their child.